Dementia Caregiving during COVID-19
Since the beginning of the Coronavirus pandemic, nursing homes across the nation have put policies in place to protect their residents and staff members. As residents in nursing homes and senior living communities continue to practice social-distancing by remaining mostly in their homes, caregivers have been presented with unique challenges.
According to the Family Caregiver Alliance, there are nearly 34.2 million caregivers who provide unpaid care to older adults in the United States. Of those caregivers, 15.7 million provide support to a family member who has been diagnosed with Alzheimer’s disease or another form of dementia. Due to COVID-19, many of these caregivers have been unable to access traditional resources, such as respite care or relying on other family members to help carry the responsibility.
Signs of Caregiver Stress
Even without the stress of COVID-19, caregiving is emotionally and physically challenging. Whether you’re caring for a spouse or family member, it’s not uncommon to experience stress, especially as your normal routines and access to resources have changed. While we all experience stress and anxiety in different ways, these are the most common signs:
Poor Sleep- When people experience stress, one of the most common indicators is a change in sleeping patterns and poor-quality sleep. Most adults function best with six to eight hours of sleep per night.
Irritability- When we feel stressed in addition to not sleeping well, it’s common to feel irritable. You might notice yourself saying things you might not normally say or having less patience than normal.
Depression- Long-term stress can cause you to experience depressive symptoms such as constant sadness, feeling hopeless and withdrawing from activities that usually give you happiness.
Loss of Concentration- When the stress of caregiving becomes too much, it can be hard to concentrate on anything at all.
Health Problems- Stress can take a toll on our immune systems, especially when we experience stress long-term. You might be more susceptible to the common cold or flu when under tremendous stress.
How to Combat Caregiver Stress
Caregiving can be extremely demanding, so it’s not uncommon for caregivers to experience periods of stress and burnout. However, this doesn’t mean caregivers have to live this way. In fact, according to Healthline Magazine, there are a variety of simple ways to combat stress.
Self-care is the most important thing caregivers can do to combat feelings of burnout, especially during these times of self-quarantine. Because the quarantine doesn’t have a certain end-date, it’s crucial to keep checking in with yourself and how you’re feeling. Pay attention to your stress levels and acknowledge when you begin to experience them more often. Eat a healthy diet, exercise regularly and make sure to save time in your daily routine for something you enjoy.
One of the best things you can do for yourself while caregiving in quarantine is stay connected with your support team. This might be a friend, a group of caregivers, or a family member that you can talk to regularly. With these times being so unpredictable, it might help to regularly schedule your call.
Tips for Dementia Caregivers during COVID-19
Caregiving during emergency situations, such as the current coronavirus pandemic, may require an emergency plan. The Alzheimer’s Association has gathered resources and provided a number of ways for caregivers to successfully support their loved one even through these hard times.
Focus on Preventing Illnesses
Caring for a person with dementia or Alzheimer’s is already challenging, so keeping a normal routine despite these circumstances is important. You might consider showing your loved one the essentials of handwashing and lead by example. Handwashing schedules and friendly reminders in the restroom and near sinks might help prompt your loved one to wash more frequently. If you’re exposed to other people, remember to wear a mask and gently remind your loved one to do the same.
In the case of an illness or emergency, it’s important to be prepared with a medical care plan. People dealing with dementia or Alzheimer’s might experience changes in condition or react unexpectedly in emergency situations, creating a new plan that is conducive to COVID-19 parameters will help you feel prepared in unanticipated medical situations. You might consider addressing these points in your care plan:
- Contact your healthcare provider to learn about their new procedures regarding routine and emergency visits
- Ask your healthcare provider if telehealth visits are available if chronic care situations should arise
- Ask your provider to help you navigate emergency situations if one should ever present itself. What is the proper protocol?
Help Keep Families and Friends Connected
Self-isolation can be harmful to those living with dementia or Alzheimer’s. Caregivers, especially those who aren’t related to their loved one, should make an effort to keep the individual connected to their family. If your loved one is used to connecting with certain people on a regular basis, you might consider scheduling consistent phone calls, video chats or exchange emails with family and friends. While social distancing limits physical connection, it’s important to find ways your loved one can stay emotionally connected to those they care about.
Plan Low-Risk Outings
For Alzheimer’s and dementia patients, maintaining a routine can make the difference between a good day and a bad one. If your loved one is used to going outside or running errands with you, low-risk outings might be a good alternative to your regular outings. Walking outside, visiting a park or even going for a drive is a great way to make the day feel exciting and productive. However, if you do decide to go out, make sure to abide by social distancing guidelines when around others who don’t live in your home.
Observe and Respond to Behavioral Patterns
According to the Alzheimer’s Association, those who are living with dementia often rely on behavior as a way to communicate non-verbally. These behaviors can be expressed through screaming, striking-out or becoming emotional. Caregivers must rely on these behaviors as a form of communication.
As routines change, you may notice your loved one relying on non-verbal communication more than usual. If you’re unsure what’s being communicated, it can be helpful to rule out root causes of the behavior such as, hunger, pain, loneliness, overstimulation, fear or frustration.
The Alzheimer’s Association has provided a list of strategies to help mitigate the behavior and identify root cause (you can find the entire list here):
- Offer a favorite food
- Look at photographs together
- Read a book or magazine
- Create a peaceful environment
- Provide tasks
- Connect with friends and family
Get the Care You Need at Inspῑr
At Inspῑr, we prioritize the health and safety of all our incoming and perspective residents. That’s why we’re focused on providing additional care and support to our caregivers during this time. To learn more about our offerings or to schedule a virtual tour, please contact us.